Support and assistance are available to help you and your family cope with the extra demands of caring for a special-needs child. To help your child have a healthy life as he or she grows up, contact these New Jersey agencies as soon as you can:
Special Child Health Services
609.777.7778
http://www.state.nj.us/health/fhs/sch/
Division of Developmental Disabilities (DDD)
1.800.832.9173
http://www.state.nj.us/humanservices/ddd/
Medicaid/Medicaid Community Care Waiver Unit of Division of Developmental Disabilities (DDD)
Medicaid: 1.800.356.1561
Medicaid Community Care Waiver Unit of DDD: 609.987.2040
http://www.state.nj.us/humanservices/dmahs/
You must ask specifically for information on Medicaid Community Care Waiver.
Catastrophic Illness in Children Relief Fund
1.800.335.3863
http://www.state.nj.us/humanservices/
Social Security and Social Security Disability Insurance
1.800.772.1213
http://www.ssa.gov
NJ WIC Services
609.989.3636
www.state.nj.us/health/fhs/wic/
NJ Resource Directory: A Free Brochure
1.800.285.3036
http://www.state.nj.us/humanservices/dds/
Postpartum Depression (PPD)
800.367.6543
http://www.njspeakup.gov
Clayton's Hope
http://claytonshope.org
Kelly Anne Dolan Foundation
http://www.kadmf.org
Enabling Devices Learning Tools
http://www.enablingdevices.com
Home Health Services Association of New Jersey
http://www.hhssanj.org
Cares for Kids (NJCK)
http://nj.gov/njhealthlink/programdetails/careforkids
NJ FamilyCare
http://www.njfamilycare.org/
NJ LIHEAP Clearinghouse
http://liheapch.acf.hhs.gov/profiles/NJ.htm
Children's Emergency Medical Fund of New Jersey's
http://njtrustekids.org
Association for Children of New Jersey (ACNJ)
http://www.acnj.org/
Kinship Navigator Program
http://nj.gov/njhealthlink/programdetails/kinship.html
Statewide Respite Care Program (SRCP)
http://nj.gov/njhealthlink/programdetails/respite.html
NJ Directory of Grant Programs
http://www.state.nj.us/health/grants/directory.shtml
American Academy of Pediatrics
141 Northwest Point Boulevard
Elk Grove Village, IL 60007-1098
(847) 434-4000
kidsdocs@aap.org
American Academy of Pediatrics
National Private Duty Association
941 East 86th Street, Suite 270
Indianapolis, IN 46240
(317) 663-3637
info@privatedutyhomecare.org
National Private Duty Association
Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, Maryland 20814
(301) 951-6378
info@cff.org
Cystic Fibrosis Foundation
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
(203) 744-0100
orphan@rarediseases.org
National Organization for Rare Disorders
Epilepsy Resources
144 Johnson Road
Turnersville, NJ 08012
Clayton's Hope
CaringBridge.org
Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery.
Caring Bridge
Center for Outreach & Services for the Autistic Community
123 Franklin Corner Rd, Suite 215
Lawrenceville, NJ 08648
(800) 4-AUTISM
Commission on Recreation for the Handicapped
101 S. Broad Street
CN 005
Trenton, NJ 08625
Division of Developmental Disabilities
Capital Center
CN 726
Trenton, NJ 08625
(609) 292-3742
Department of Education
Office of Special Education Programs
CN500
Trenton, NJ 08625-0500
(609) 633-6833
Down Syndrome Association of NJ
600 New York Ave
Trenton, NJ 08625
(609) 695-4006
National Association for the Deaf (NAD)
814 Thayer Ave
Silver Springs, MD 20910
(301) 587-1788
National Information Center for Children and Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, D.C. 20013
(800) 999-5599
State-wide Parent Advocacy Network (SPAN)
35 Halsey St - 4th Floor
Newark, NJ 07102
(800) 654-7726
United Cerebral Palsy Association of NJ
110 Roosevelt Blvd., Suite 107
Marmora, NJ 08223
(609) 390-1376
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